DALLAS--(CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host a Bowling to CureDuchenne fundraising event on February 10 at Lewisville Lanes in Lewisville, Texas. Sports celebrities from the Dallas Cowboys, Texas Rangers and an Olympic Champion including Rocket Ismail, Tony Banks, Larry Brown, Billy Joe DuPree, Jose Guzman, Pete Hunter, Robert Newhouse, Nate Newton, Carly Patterson, Drew Pearson, Preston Pearson, Jeff Russell, Don Stanhouse and Everson Walls will bowl with community members to benefit CureDuchenne.)--
“Based on the science, Duchenne could become treatable for this generation of boys. We just need to continue to fund promising research to ensure all Duchenne boys have the chance for an extended lifespan and improved quality of life.”
The Bowling to CureDuchenne event is in honor of Nathan Rothe, 10, who lives with Duchenne. Duchenne is a progressive muscle-wasting disease that impacts 1 in 3,500 boys. Boys are usually diagnosed by 5, in a wheelchair by 12 and most don’t survive their mid-20s. Ted and Jessica Rothe, from Highland Village, are organizing the event. All proceeds of Bowling to CureDuchenne will benefit CureDuchenne, the leading organization funding research through venture philanthropy to find a cure for Duchenne.
“When Nathan was diagnosed with Duchenne at age 5 we were devastated to learn there is no cure or treatment,” said Jessica Rothe. “Now there are a lot of exciting things happening in Duchenne research and there is hope for Nathan and the other 300,000 boys worldwide with Duchenne.”
“We are getting closer to a cure for Duchenne,” said Debra Miller, founder and CEO of CureDuchenne. “Based on the science, Duchenne could become treatable for this generation of boys. We just need to continue to fund promising research to ensure all Duchenne boys have the chance for an extended lifespan and improved quality of life.”
The title sponsor of Bowling to CureDuchenne is Cadillac. Other sponsors include: Buchanan Technologies, Dicks Sporting Goods, DKH Academy, Fort Worth Cops for Kids, JJs Lawn Care, Masergy, Mobile Media Graphics, Parity IT Specialists, Pediatric Dental World, Remax, The Tutoring Center, WinKids, Youth Sports Denton County and Youth Sports Collin County. To sponsor the event or donate, click here or call CureDuchenne at 949-872-2552. The event includes bowling, food, beverage, raffle and a silent auction.
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide.
CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne through venture philanthropy. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been successful in being a catalyst for human clinical trials.